Our Charity

This Article Was Written By Paul Mara, Please Take The Time To Read It, THANK YOU…

Our Charity

On the 3rd of November 2010 one of our grandsons, Riley at the age of six was diagnosed with Acute Lymphoblastic Leukaemia (ALL) which is a fast-growing cancer of the white blood cells.
Lymphocytes are a type of white blood cell that the body uses to fight infections.
In ALL, the bone marrow makes lots of unformed cells called blasts that normally would develop into lymphocytes. However, the blasts are abnormal. They do not develop and cannot fight infections. The number of abnormal cells (or Leukaemia cells) grows quickly. They crowd out the normal red blood cells, white blood cells and platelets the body needs.

We were all shocked especially as my grandson lives in New Zealand and my wife and myself along with 3 of our children live in Australia, 1 in Tahiti and of course 2 in New Zealand.

I understand there are people that are reading this that have been in a similar situation with a loved one especially when it’s a child and are fully aware of how it feels. If you haven’t then I pray to God that you never will.

I really just couldn’t imagine what the parents must have gone though on that day!

The first thing I did was Google it, I had heard of it but needed to know more, I always check Mayo Clinics website first and even though it was thorough I needed to find statistics.

Our Brave Riley In Hospital In July 2012

Riley In Hospital In July 2012
Click on image to enlarge

Then I got call from my son who explained it all plus how he would need a minimum of three years treatment, Wow that’s a long time!
The good thing was that the success rate for curing this type of Leukaemia was very high and treatments have improved.
I really felt for my son and his wife not being there, in saying that they are wonderful and caring parent and I knew deep down they would cope.

On the 22nd of March 2011 I went to help my son and wife and spent nearly three months with them, mostly I stayed with my eldest daughter as my grandsons condition meant he is susceptible to getting ill as his immune system plummets during treatment as mentioned above.
Hygiene is of the up most importance!

Initially I struggled to watch the brave little boy face this challenge head on and his knowledge about what he has and the treatment, the terminology was amazing, on the occasion where I did go to hospital with him for treatment he would say “Pops this is how this works what they would do next etc” right down to the finest detail simply unbelievable!
I am sure there must be a stronger word than “BRAVE”.

During those visits there were other parents with younger or older children receiving treatment, I was a Medical Interpreter, Translator and Liaison for nearly 20 years and I had to cope with some very, very sad challenges.

But seeing my grandson and these other children with their parents was heart rendering and makes you realise how vulnerable children are, and I believe any grandparent would give their life for their grandchild if it were possible.

Support

The support for these families is amazing in New Zealand, I am so proud to say I’m a Kiwi, I’m sure there are many, many more countries with the same level of support, it must be atrocious for third world countries.

Please Offer You Support Now! Thank You…

A Proud Mum

This is what his mother had to say after one year of treatment on Facebook.Riley The All Black
“He has accumulated a total of 563 beads of courage until September 2011.
1 colour bead of courage = 1particular treatment
This helps him go through this ordeal, more positively.
His favourite ones = the Tortoise Bead = Lumbar puncture.
A “blessing in disguise”??
I can still remember all the very difficult treatments and side effects, and I can still visualize the chemo making its way pulse by pulse in the line to his vein.
But I most remember all the people genuinely caring for us, all the prayers that are being said from literally all around the world for Riley, uniting and reconciling people.
A “blessing in disguise “!!,

He is so brave !

Smiling, having fun!!

And so compassionate!

I’m a very proud mum!”

YES!
That is thanks to his loving parents.

OUR CHARITY

In New Zealand there is Charity called Shave For A Cure of course while I was there in 2011 I joined and shaved my head along with my son, my 14 year old granddaughter and one of my “Brothers” Coco I was so proud that my granddaughter was willing to shave her head for her little cousin.

The Charity continues to grow because nearly every week there is one child diagnosed with Leukaemia and of course all your donations are welcome to support them.
PLEASE SUPPORT THIS CHARITY to find out more Simply Click Here…

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